Share your story

Share Your Story

 

Your story has the power to inspire, educate, and create change. At Epilepsy Toronto, we believe that personal experiences are one of the most impactful ways to raise awareness about epilepsy and break down the stigma surrounding it. By sharing your journey, you’re not only giving a voice to your experiences but also helping to build a community of understanding and support.

Why Share Your Story?

Sharing your story can:

  • Raise Awareness: Many people don’t know enough about epilepsy. Your story can help educate others and encourage understanding.
  • Inspire Others: Your journey can provide hope and encouragement to someone newly diagnosed or struggling with their condition.
  • Break the Stigma: By opening up about your experiences, you help challenge misconceptions and show that epilepsy does not define who you are.
  • Advocate for Change: Personal stories can highlight gaps in healthcare, education, or workplace inclusion and help us advocate for better policies and resources.

How Will We Share Your Story?

When you share your story, it becomes a powerful tool for change. We may feature your story on:

  • Social Media: Highlighting real voices in our community to amplify awareness and understanding.
  • Campaigns: Showcasing your journey as part of our initiatives, like Epilepsy Awareness Month.
  • Media Outreach: Sharing your story with media outlets to help educate the wider public.
  • Our Website: Inspiring others by creating a collection of stories that highlight the diverse experiences of people living with epilepsy.

Frequently Asked Questions

Anyone impacted by epilepsy living in or near, or connected to the Greater Toronto Area can share their story with us. Whether you’ve been living with the condition for years,  have just recently been diagnosed or if you are the family member, caretaker or loved one of someone who lives with it, your perspective matters.They say a picture is worth a thousand words, so if you are willing to share a photo, we would truly appreciate it and it will increase the probability of your story being shared. But if you prefer to not share a photo, or to share your story anonymously, we still want to hear from you and encourage you to complete our form.Our team will review your submission and may contact you for additional details or to let you know if/when/where we plan to share your story. Not all stories will be shared and some may be saved for future campaigns.Yes! You can let us know if you prefer your story to be shared, or not shared, on specific platforms or campaigns.That’s okay. The form below will guide you with specific questions and prompts to help you tell your story in a way that feels comfortable and authentic to you.Simply fill out the Story Submission Form below. If you have questions, contact us at [email protected] , and we’ll guide you through the process.

READY TO SHARE YOUR STORY?
Your story matters. It can change lives, build connections, and create a more compassionate world for everyone living with epilepsy. 

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About You

Your Name(Required)
Would you like to remain anonymous or are you comfortable sharing your name with your story?(Required)
Your Address
AlbertaBritish ColumbiaManitobaNew BrunswickNewfoundland and LabradorNorthwest TerritoriesNova ScotiaNunavutOntarioPrince Edward IslandQuebecSaskatchewanYukon
Your Email Address(Required)
Is it ok for us to call you at this number and leave a message ?(Required)
Are you 18 years or older?(Required)
Which statement best describes you?(Required)

If you’d like some help getting started, here are some questions you could answer (but are not required). When did you or your loved one develop epilepsy? What feelings did that diagnosis evoke? What do seizures looked like for you? How frequent are they, what type and what impact do they have? What types of treatments have you explored and have they been effective? Have they presented their own challenges? etc.
Again, here are some questions to help guide you. How has epilepsy affected your life? (Think of your education, work, family and relationships) Are there barriers that have had to be overcome? Are there any achievements you’re particularly proud of? How has your mental health been affected?
We’d like to hear about the things that are important to you. This could be issues directly related to epilepsy, such as employment, education or driving; or it could be about cultural attitudes towards epilepsy in your community. It could also be your interests and/or things you’re passionate about, such as accessible sport, LGBTQ2+ representation or a community activities you’re involved in.
What Epilepsy Toronto support services have you accessed (tick all that apply):
If there was opportunity, would you be interested in sharing your story with the media?(Required)
Have you or are you currently attending post-secondary school?
Some schools have their own media outlets specifically for students/alumni.
Accepted file types: jpg, png, Max. file size: 200 MB.
This field is hidden when viewing the form

Thank you!

Epilepsy Toronto will never want to use your story without your autorization. For more information, read our privacy policy.
This field is for validation purposes and should be left unchanged.
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